Aiden’s Story

Site created on April 24, 2018

Aiden has had complications with consipation his whole life. But this year it has gotten so serve where he pukes up BM's (poop) . He gets so backed up all the way to his lungs. He has been in and out of hospitals alot. He gets really bloated and uncomfortable and from carrying around so much poop in his colon it has caused some nerve damage to his legs. He has alot of leg pain and can't walk or run alot like he used to. If he does that night he will be up all night in pain. 

Newest Update

Journal entry by Jericka Blankenship

We are currently at Mayo in Rochester Mn. We were only supposed to be here for 10 days for testing. On the 5 day we sat down with aidens medical team and were told the dignosis. Aidens Colon no longer functions it doesn't work. We weren't given many options. But we have decided to try the chait cecostomy tube. Its a tube that will be connected to his colon and he will have a port on the outsided of his stomach to put medicine directly into his colon.hopefully restarting it. If it works he will have to have it for a minimum of 2 years but could have it til hes an adult or life.  If this doesn't work we will have to go on to Ohio childrens hospital for further testing and colon removal. They are not able to do this surgery til may 3rd because they want us to do daily clean outs and physical therapy with him everyday at Mayo til then. 5 days has now turned into 21 days. Watching him go thru all this has been so heartbreaking. But he keeps reminding me that God made him Strong like all the Superheros. He has been so brave thru all of this even though at times he is scared and in pain. 
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