Adam’s Story

Site created on March 10, 2019

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Newest Update

Journal entry by Jamie Davis

Once again a lot has happened since my last post. Adam has been home from the hospital for a week and a half now. He spent 3 weeks for a collapsed lung again. Not his typical presentation. He started having congestion about the same time Stella’s allergies starting flaring up (runny nose). By the time I brought him to the ER on 7/21, he was actively wheezing and having difficulty breathing despite his oxygen. He was convinced he had COVID-19. This was probably one of the worst  ER experiences for me. I literally had to park him in a wheelchair in the waiting room and leave the building. I was initially told that once he was brought to a room, I would be allowed in. However, because he had shortness of breath he was placed in isolation and assumed to have COVID. They did a study to rule out pulmonary embolism and found that instead he had a very small lung collapse on the right and a bigger one on the left. His COVID test was negative, chest tube placed, and admitted. 

For the first 2 weeks he made no real progress. He was taken off suction a few times to only be short of breath and the lung collapse within a few hours. A bigger chest tube was placed. Still no progress. To say he is tired of being in the hospital is a HUGE understatement!  Visiting hours are limited to 730-5 daily, only one visitor at a time, and no one under 16 is admitted. Thankfully, I’ve made it to see him everyday except for one. The girls have FaceTimed almost daily. My parents, sister, and nephew helped them make a huge sign and they surprised Adam with it.

Ultimately, he had surgery. The chemical pleurodesis he had during the last hospitalization in May didn’t work as well as expected. This time, the surgeon went in laparoscopically and did a manual pleurodesis. He went to the ICU following the procedure. Shortly after surgery, he had about 2 liters of fluid (betadine mixed with blood) out of his chest tube. He continued with significant output over the next day. Remember he’s on blood thinners and despite stopping them preoperatively, he was restarted soon after. Labs showed his hemoglobin at 5 (upon admission it was 14). This means he was severely anemic and received 3 units of blood. The following morning it was 8 but then dipped back down to 7 in the afternoon. 2 more units of blood were transfused. He was not well during these days to say the least. Praise the Lord, he made a turn for the better over the next few days. He was transferred out of the ICU back to the floor. To his same room from May 😃 He was able to get his Keytruda infusion while inpatient & had another one today. 

He is home now with oxygen 24/7. Upon my request, home health physical therapy is coming a few times a week to help him regain his strength. She told him that it takes a week to recover for every day spent in the hospital -whoa. My mom came to stay with us right after his surgery. What a God send. I’m not sure how I would have managed these past few weeks without her.  She has cooked, cleaned, taken care of the girls & dog, and more importantly cared for Adam while I try to work.

There are not enough words to express our gratitude to everyone that makes up our tribe. Thank you to everyone who has gone above and beyond to support us during all the ups and downs of this crazy journey. You not only have supported me and Adam, but you have blessed our children over and over again. 



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