Journal entry by Shauna Erickson —
Greetings Team Abou Zahr!
We hope our update finds you well. We continue to ride the incurable cancer rollercoaster, but fortunately as of late have had a bit of stride to the ride. First, Abdallah had an MRI two weeks ago which showed all of his spinal masses smaller or stable in side- major victory. Unfortunately today his lab work for that CK muscle enzyme came back significantly out of range (again re: a couple cycles ago). The hope is that we can delay chemotherapy to 4/8 instead of 4/1 as planned. As I have previously mentioned, this is scary to have to do, but we need prioritize giving that lab time to stabilizing due to the dangerous side effects. If your family is praying, we will take some for that. This means that 4/8 will be a big day for our family as Abdallah will (hopefully) have chemo, baby Nadia will start daycare, and I will return to work. Lets just say I won't be wearing any mascara that day in anticipation of the adjustment tears.
Abdallah continues to be the exact parent I knew he would be- calm, unphased by loud baby times, and patient with the intense new mom. He just the best. We did something insane, and flew to Florida with 10 week old Nadia last week. A friend accurately said- that is a trip, not a vacation, and she couldn't have been more correct. Luckily my hair is already grey with the planning of and actually flying with an infant, but we had a lovely time staying by the sea with my family. As I have mentioned before, I love watching Abdallah by the ocean because he has this perma smile on his face as he soaks in the sun and the salt air. For those of you that didn't know, Abdallah didn't know how to swim until he took swimming lessons in 2022-2023, so on this trip he got to swim in the pool and wade into the ocean which was new for someone with a water phobia as significant has his once was. So proud of him.
Thank you for continuing to follow Abdallah's journey in living with metastatic sarcoma. It is hard to believe its been 9 months since we knew about the recurrence. I keep telling him he has to give me at least 10 more years together (of course I never reduce any time from that)... he flashes me his beautiful smile every time.