October 26, 2018
Busy day today. M slept pretty well and woke me about 7:30. At 9:30 his occupational therapist through the school district came and went over the plan going forward for his care and for the other specialists. After that we put him down for a long nap and I was able to get some work done.
He napped for a few hours and then we had to go back up to Children’s Hospital in Minneapolis for her Maxley’s blood draw. They tried on Monday at the pediatrician but they couldn’t get enough blood which is normal for him. They said at the dr that they couldn’t do an IV poke because he was so small so we had to go back to Children’s. When we got there it took forever to check in and then they ended up just doing a heel poke. It’s way better for Maxley but how annoying for his to drive 45 min up there and expose him to hospital germs and 45 min home for something they could have done 5 minutes from my house.
After we got home the home nurse Jenny came and weighed him and did his vitals. He is 7lbs 6.5 oz. he is growing more rapidly now which is great! He is spitting up less with the reflux meds so he is really improving. Before he was gaining about 15grams per day and now it’s about 23!
It’s been a long few days, off to bed early.
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