Today began (does the day ever start if you didn’t sleep? It’s more like yesterday never ended) with me giving up at 6 am and getting up with him. He actually slept most of the night but he beeped, boy did he beep. I would wake him and flip him and clean out his nose, etc. Then today, Dr. Beissel, Maxley’s cardiologist, said not to wake him and the beeping isn’t that important. He was surprised that we went home with a pulse ox and so we don’t need to wake him, we just keep it on to know he is breathing but we will just have to let it beep. As long as he is propped up and nothing is covering his mouth or chocking him, he is fine. Let the beeping continue.

Echo was the same, no real changes. I did request to put him on a reflux med. That should hopefully help the beeping (for my sake) and help the worsening spitting up. We got the prescription today and it will take a few days to kick in.

I worked from home the rest of the day and then tonight Codi brought the kids over for dinner and to play. I miss them so much. Scott and I were used to seeing them at least once a week. They change so much.