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Please feel free to follow our journey here. We appreciate all of the love, prayers and support we have in our lives-for us and our children.
I apologize in advance for my scattered thoughts, TMI and long sentences.
On Wednesday 4/5, I (Carly-but not to be confused with iCarly the TV show!) was scheduled to have lunch with my coworkers, who I've missed and been ready to introduce Zoe to-at the Indiana School for the Deaf. I planned to run Zoe to an appointment I made for her the day before and then head that way. The appointment was to have her pediatrician take a look at her eyes, which I thought had looked greyish in the white parts. I noticed this at around 2-3 weeks and had a weird feeling about it, but decided that she was just still brand new. Over the next few weeks, people started to comment that she looked a little jaundice. Since she has darker olive looking skin (compared to the boys) and wasn't jaundice at all at birth, I wasn't worried, but did start to pay more attention. I asked almost everyone who saw her if they though her eyes looked grey or yellowish. So many times I have taken the boys to the doctor, only to find out they are FINE, so I decided to just wait and see. There is also something called breastmilk jaundice that can develop after birth and clear up within a few weeks. She was having totally normal poop and pee diapers and doing normal baby things, so I just didn't believe we had anything to worry about. Sometimes her skin did look different to me, but it would come and go and depend on the lighting-etc. We knew that she was tiny looking, but she was also gaining, even though small. I took her to her newborn appointment, and her one month appointment and her 2-month appointment is coming up soon. Also, my grandpa had 10 other taller brothers but one sister who was TINY just like his mom. We thought that she was just going to take after her and be a little peanut.
So, back to the appointment. Quickly, the doctor shared that she wasn't satisfied with her weight gain, even though all this time I felt like she was getting bigger. She also was very concerned about her eyes, which that day just so happened to look more yellow. She ended up consulting with her fellow doctors in the hallway and making a few calls. Immediately we were told to head over to IU North for bloodwork and then to another building for an ultrasound of her upper right quadrant. I knew at that point it wasn't good. During the scan there appeared to be no gallbladder and she also had fluid around her liver. I headed home and waited patiently but anxiously. The ped finally called back and told me to head to Riley and to plan on staying.