Zachary Jones

First post: 8/4/2016 Latest post: 1/4/2017
Zac, Zman, Zachary,Zacious. Little brother, uncle, nephew,cousin,grandson, youngest child. Funny, kind, loving, smart,strong,courageous. 
These are the things that we want to talk about when we talk about Zac. Not chiari, not spinal fusion, not cranio cervical instability. We don't want to talk about his compressed brainstem and all of the really bad things that come from that. His body forgetting how to swallow. His heart racing so fast he feels like it will beat out of his chest. The central sleep apnea. The host of issues he has faced his whole life. 
But here we are. Getting ready for a spinal fusion, removal of the C-1 and possibly the C-2 vertibra. Especially because we have been down a simular road 7 years ago with his decompression surgery. 
So here we are, using caringbridge- as our bridge. Our bridge that goes both ways. It lets us talk with you and you talk with us. We are so grateful to have all of you standing in the gap, praying for us, with us. Lifting us up in your prayers. Holding us in your hearts. 
We know the power of Devine intervention and pray ceaselessly for another miracle. 

Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.







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