Dec 23, 2016 Latest post:
Apr 27, 2018
We will be frequently updating our journal entries to keep everyone in the loop. Please forgive us that our plate is quite full right now and might not be able to update as frequently as we would like. We will do it as much as we can, with the time that we do have and as test results come back.
12/22/2016 - It all started four weeks ago with a small tummy ache and some hip pain. Olivia was brought to the doctor a number of times with a given diagnosis of a pulled muscle, viral infection and constipation. She had been having difficulty with her temperature over the last week. This all escalated quickly when Olivia's temperature rose to 106 degrees. Her primary doctor recommended that she go to St. Paul Children's Hospital Emergency Room to be evaluated because her fever had gone on so long. After a number of tests and unanswered questions, the oncologist came in and told us that she has a mass in her abdomen and in her hip/groin area. They then decided that she should be transferred to Minneapolis Children's Hospital because they have amazing oncologist's here that specialize in what they saw in her.
12/23/2016 - Olivia needed to get a CT scan because the doctors wanted to be able to see a better image of what was showing up in her abdomen and hip/groin. After a number of restless hours the doctors came back and said "Jon and Kari, we have confirmed our initial assumptions. It is a cancerous mass. We have Olivia set up at 9:00 A.M. Saturday morning to biopsy the mass to get confirmation of what type of cancer that she has." We were also told that because of the holiday we will not get results from the biopsy until Tuesday. With what they are seeing in the scans, the doctors are very hopeful in what type of cancer they believe it is. If they are correct in their assumptions of the type of cancer, chemotherapy will kick its ass! With that being said, she will be receiving a port during surgery tomorrow, which of course will be helpful because Olivia, like anyone, does not like being poked!
The rest of the day was spent watching movies and seeing how loud we could get the T.V. volume without getting in trouble. Family came in and out through the day. Santa and Mrs. Claus made a surprise visit. Olivia was also able to celebrate Christmas a little early with some family and open presents with everyone since we will be in the hospital for the holidays.
Olivia was in high spirits all day and couldn't wait to play with her cousins and her new toys.
She is currently in bed, peacefully sleeping and getting her beauty rest for her big day tomorrow morning.
We appreciate all messages, texts and posts. Please keep in mind that this is a very sensitive subject to both Olivia and her family. We welcome people to come and see her, but please check with us to make sure that we are all on the same page. Cancer is a very scary word and we are trying to make the process as fun and smooth as possible for her. As of right now Olivia understands that she is here because she doesn't feel good and we are trying to find out why. This is the best hospital to accomplish that.
All visitors are welcome, but please take note that we don't talk about cancer in front of Olivia. So if you do want to talk about Olivia's situation, please ask either Jon or Kari. They would be more than happy to answer your questions outside of Olivia's hospital room. We are not doing this to hide it from her, but we are doing this to make sure that she is as comfortable as she can be without having a final diagnosis and a plan.
Olivia is getting a lot of hugs and kisses at the Children's Hospital in Minneapolis. We encourage visitors to come and spend time with Olivia. She appreciates everyone that comes because it helps the time to pass. She is also very excited to show everyone her awesome room, 'cast' and toys. We will post another journal article with directions, parking information and how to get to Olivia's room.
Feel free to share this page and website with anyone that knows and loves Olivia and her family. Thank you again for all of the love and continued support!