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9/25/2016 Latest post:
Wyatt is an amazing 5 year old who loves life! You will rarely see a frown on his face though most of his life has been a struggle. He was recently diagnosed with a very rare genetic disorder, Bohring Opitz Syndrome. Suddenly all of his symptoms are "normal" for his condition but this long awaited knowledge also comes with new fear. There are less than 60 with this syndrome in the world and of them only 5 have lived through childhood. With this page I will tell you his story and keep you updated on his condition.