Will Twork

First post: Nov 1, 2010 Latest post: Aug 23, 2022
Welcome to our CaringBridge website. We've created it to keep friends and family updated about Will's journey through neurosurgery and rehabilitation. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

Welcome to Will's Page! Will was born at 37 weeks with his twin sister, Anna. Both babies were healthy and beautiful, but within hours of birth Will began seizing, and was rushed from the nursery to the NICU for testing and treatment. We were told the following evening our baby son had had a massive stroke due to a blood clot (infarct) on his left side. He was placed in a medically induced coma for a week to get the seizures under control; we were told his prognosis was poor, that he would most likely need intubation indefinately given the massive doses of medication, and we should be prepared for moderate to severe disability.

Will had other plans, however, quickly showing his doctors and family that the name "Will" was perfect for this tiny, strong little baby. He was released from the hospital two weeks after birth and never did need intubation or feeding assistance. He came home to join his sister and set about the business of being a feisty, demanding newborn! We were so happy to have him back, with our babies together again.

Life went on, the babies grew into toddlers and we spent lots and lots of time in physical and occupational therapy. When Will was about 18 mos. a routine EEG showed increased spiking (hypsarrhthmia) on his left side, and we were told he needed neurosurgery to keep the damaged tissue from harming his healthy, unaffected right side.

We sought 2nd opinion, and while initially their direction was "watch and wait," now at four years old William will have his surgery on November 18, 2010 at Cleveland Clinic. 

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