Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope
William's update as of 1-17-2018
William spiked a fever yesterday, so antibiotics are started. His ANC is down to 24, they can go to zero. Friday they were 2999. But they go down before they go up. The chemo can cause mouth sores and did, also in his throat and nose. Had a nose bleed that lasted 20 minutes this morning, 6 today. He is not eating or drinking. It hurts.... His finger tips all have blisters on them, so all Are covered with band aids.
It's a wait game now till his numbers start to go back up. He is mean, and cranky. All lights burns his eyes. On the upside of things, his color is back and the red around his eyes are gone. Its hard on me when William feels I am the one that's put him in here and he thinks I keep him here. I make him do all treatments, take all meds, take PT, OT, ect. Even when he does not want to move. All he wants is Elizabeth and Elijah here or to go home. He points for me to leave, yells for me to get out, Don't touch him, and as soon as he yells at me, he says sorry and hugs or I love you with sign language. Is hard for him to even open his mouth to put his lips around the straw. So even yelling, spiting, just moving his mouth hurts.
As far as Elizabeth and Elijah, they seem to be doing ok. The schools have been amazing with them. Weekly lunches and talks with guidance. Weekends they are here with William. They are great with him. They help him take his meds, eat, wipe his mouth. The all play Xbox and the Wee. We need a wee for them at home, had no idea Xbox does not have many games that the 3 can play together. But they really enjoy being with each other.
Faith seems to be ok most if the time. She gets overwhelmed easy, and feels alone not knowing anyone here. (And we all know how social she is). I hate putting the kids all on Faith. And she has no room for her to have her own life right now. And this is hard for her. And breaks my heart for her. Her transmission went out and will cost about 2500.00 to have a transmission put in. So I am at the hospital, and Faith has the van. The van needs a rod replaced before the motor quits. (Always something going on for sure. )
Greg is doing the best he can trying to work and be there for me ,and for Faith ,and the kids all from working in Maryland. 2 hour drive from here or home. He tries to spend at least 1 night a week here. And tries to find time with Elizabeth and Elijah also. And fits me in when we can. On a huge plus side, this has all been amazing for Greg. Never has he seen the out pour of Gods people coming together as he has seen with each prayer, and gift you have sent our way. This has opened his eyes to see Gods people come together for each other. So a special Thank you from my heart.
Greg and I are fine, but finding time for us is just not there, and it's still less then 6 months married. We are still not even unpacked. I was only home 2 weeks before we started this journey with stage 4 cancer with William.
Our needs as you can see are 1st prayers. But we also in need of a mechanic, helpers to help Faith clean house each time before William can come home. And of course money for bills, gas and tolls. With me not being able to work for the next year it's a Faith building time for all of us.
Thank you so much for prayers, and dinners and the money and gifts you have shared. You may never understand what a blessing you have been to our family. We all THANK YOU. And may the good Lord bless you in everything,and encouragement. Thank you for visiting.