At 4 months old we noticed Waylon was falling behind on his physical development. After lab work done by our pediatrician it was determined that his body is breaking down his muscles at an alarming rate. We spent a week in children’s hospital which has been very difficult on our other 3 kiddos. So far we don’t know much were waiting on genetic testing to come back while we work on Waylons feedings.
CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.