Brooke Milburn UC and B

First post: Jul 3, 2022 Latest post: Jul 6, 2023
In August of 2017, I began experiencing sensitivity to a lot of dairy products. I chalked it up to being lactose intolerant, and changed my diet to accommodate this. As time went on, I started noticing more and more foods that were causing me pain when I ate them. Then, I began passing large amounts of blood when I would use the bathroom. This obviously caused severe alarm, so I scheduled a doctor's appointment with my doctor in Lafayette. During this appointment, I was told that it was just hemorrhoids. I was insistent that was NOT the issue, but I played along. My friends and family at the time didn't believe it was as bad as I was making it out to be. I became extremely anemic, and it wasn't until I started passing out in front of people, that they took it seriously. I went back to the samedoctor and told him once again what was going on, and again he prescribed me hemorrhoid cream and sent me on my way. I immediately began looking for a new doctor in Terre Haute, where I was finishing up college (this is in June of 2018 at this point). I found a female doctor who, within 5 minutes of hearing my symptoms, had a strong opinion that I had Ulcerative Colitis. By the end of the appointment, I had a referral to a GI and a colonoscopy was scheduled. I had my first colonoscopy in July of 2018, where it was confirmed I have Ulcerative Colitis. We began treatment shortly thereafter. Unfortunately, I failed all of the treatments I was on, so we just kept trying new medications. Fast forward to August of 2019, and I found out I was pregnant. I had to stop the medications I was on at the time. I began flaring extremely bad at this time, and in October of 2019, I made the move back up to the Lafayette area to be closer to family when the baby got here. Unfortunately, in November of 2019, during the height of a flare, I delivered my Emerson Michael at 22 weeks, and he did not survive. I was able to restart medications after this tragic event. In January of 2020, I started on Entyvio. This medication was able to throw me into remission, which was good with COVID running rampant. Unfortunately, in January/February of 2021, the Entyvio stopped working. Cue the beginning of my current situation. We have been struggling to find the medication concoction to send me into remission again. Since March of 2021, I have been hospitalized upwards of 20 times, each time for at least a week. That being said, the updates are where my story continues...