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Mar 26, 2017 Latest post:
Jun 28, 2017
Tyler was diagnosed with Chiari Malformation in February of 2013. A simple appointment with his pediatrician for what we believed at the time to be Vertigo, quickly escalated to an MRI and referral to a neurosurgeon. Our life turned into documenting his dizzy spells and trips to Helen Devos Children's Hospital every six months. The emotional roller coaster continued when they found that had Spinal Syringomyelia as well. He was allowed to continue his love of football for another season, but was eventually restricted from contact sports. Looking back, we were lucky to have continued at a monitoring state as long as he did. This past summer at a routine MRI in August, it was discovered the syrinx showed signs of growth and the cerebrospinal fluid had slowed. We were advised to consider a Posterior Fossa Craniotomy, otherwise known as Chiari Decompression. After the shock settled and many prayers, lots of research, as well as a recommendation from an amazing friend, we found ourselves at Michigan Head & Spine Institute. Our second opinion confirmed and Tyler underwent surgery at St. John Providence Hospital in Detroit, MI on March 20, 2017.
Thank you to my great friends Michelle and Becky for starting this site so we can keep family and friends updated in one place. We appreciate your support and words of hope and encouragement.