Tyler May

First post: Jun 13, 2022 Latest post: Jun 20, 2022

Tyler is a very active 6 year old boy who is very sweet, loving, kind,and is also a twin to sister, Isabella. Tyler loves to be outdoors, riding his bike, riding his dirt bike, swimming, laughing, being silly, running, playing with his friends at recess or in the neighborhood, and playing sports! 

In February 2022 Tyler was diagnosed with an extremely rare disease: “Rasmussen’s  encephalitis, sometimes referred to as Rasmussen syndrome, is a rare disorder of the central nervous system characterized by chronic progressive inflammation (encephalitis) of one cerebral hemisphere. As a result, the patient usually experiences frequent episodes of uncontrolled electrical disturbances in the brain that cause epileptic seizures (epilepsy), and progressive cerebral destruction. With time, further symptoms may include progressive weakness of one side of the body (hemiparesis), language problems (if on the left side of the brain) and intellectual disabilities. The exact cause of this disorder is not known. The two leading ideas are that the brain inflammation might be a reaction of a foreign antigen (infection) or an autoimmune disease limited to one side of the brain resulting in brain damage ( https://rarediseases.org/rare-diseases/rasmussen-encephalitis/).”

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