Tristan Standifer

First post: Sep 14, 2019 Latest post: Nov 24, 2020
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Tristan was diagnosed with Langerhans Cell Histiocytosis on September 11, 2019. This was exactly two weeks after we saw the first visual symptom. LCH is a rare disease that is not inherited. It is also not believed to be genetic. It is acquired after conception and the cause is unknown. It's not like a cancer (although it proliferates like a cancer), his cells are doing what they are supposed to, they are just doing too good of a job. He has some mutated immune cells that are stuck in the "on" position. So instead of just attacking bad things, they are also attacking good things.  He has low-risk LCH, meaning none of his risk organs are affected. Only his lymph nodes are affected right now, although there is evidence that he had a small skull lesion at one time. He is feeling perfectly fine as far as we can tell. 

He started chemo on 10/16. Chemo will last one year and we hope all of these mutated cells will be eradicated during this year's treatment . 

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