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Apr 29, 2018 Latest post:
Jul 2, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Tracey has a rare condition called Arnold Chiari malformation. Chiari malformation is a structural defects in the base of the skull and cerebellum, the part of the brain that controls balance and many other areas. Normally the cerebellum and parts of the brain stem sit above an opening in the skull that allows the spinal cord to pass through it (called the foramen magnum). Tracey’s cerebellum tonsils have descended through that opening. This causes many symptoms, the worst would include severe migraines balance issues, loss of vision, speech issues, motor skills, numbness and chronic pain all down the left side of her body. Tracey was in a golf cart accident in 2012 that exasperated her condition to the point she was in a wheel chair and basically had to learn to walk and talk again after surgery a year later. She was symptomatic for the past 5 years, but the cerebellum has descended again causing all these symptoms to come back and some worse. The surgery is complicated and complex, and they have interviewed several doctors but need prayer in finding the right doctor, and would especially like that doctor to be nearby.