Trace Bulger | CaringBridge

Trace Bulger

First post: 12/7/2016 Latest post: 4/24/2017
Welcome to our CaringBridge website.  Thank you for coming here to support Trace and our family!  As you are most likely now aware, Trace has been struggling with a complicated neurological problem.  We will use this site to keep you informed about his battle with this serious health issue.  Reaching a diagnosis has been very difficult.  Trace is being cared for by  several specialists at the Mayo Clinic in Rochester, MN and by local doctors/specialists in IN.  We have been to "the clinic" five times since June 2016.  As of December, 2016, the doctors still do not have a definite diagnosis.  What we do know is that he has certain markers in his cerebral spinal fluid (CSF) that indicate a possible autoimmune response and inflammation.  We know that he has a problem in the basal ganglia area of his brain (which modulates the control of his motor functions).  This explains his speech, balance/coordination, handwriting, coughing/choking, and other problems.  The current diagnosis is Autoimmune Encephalopathy with parkinsonism features, hypokinetic dysarthria (his speech disorder), postural imbalance, cough, elevated CSF protein,  elevated CSF oligoclonal bands, and elevated CSF  IgG index.  This is a very difficult time for all of us.  We thank you in advance for your love, prayers, and support.  We have provided some backdated "updates" (under "Journal") to explain what we've done over the last year.  We will continue to update as we go.  We are keeping our heads up - as we know that GOD GIVES HIS HARDEST BATTLES TO HIS STRONGEST WARRIORS.  20 years ago, we chose Trace's name in part due to its Gaelic and English meanings:  Courageous, the Battler, Brave, Warlike, & Fierce.  He is living up to his name! 

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