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My journey to SNUC diagnosis started in Fall/Winter 2019 when I noticed my right eye would water/tear when exposed to a cold breeze. Sometime in December/January I lost my sense of smell and the eye tearing increased in frequency. Finally in April/May I experienced sinus congestion and intermittent vision issues in my right eye. A visit to an ophthalmologist ruled out nerve or muscle issues but tested and confirmed a blocked vessel that drains tears to the throat. Next referral was to an ENT "Eyelid" doctor that was concerned with the small bump at the side/bridge of my nose. Lastly, I was referred to another ENT doctor that specializes in the sinus area. A biopsy through the right nostril and Head CT was completed ... and tests confirmed a Sinus Nasal Undifferentiated Carcinoma (SNUC).
SNUC is a very rare aggressive cancer ... I believe about 100-1000 times less common than breast cancer with no evidence-based treatment plan. Therefore, my team of cancer doctors could not simply recommend what sequence to complete my treatment - Surgery, Radiation, and Chemotherapy. It was a very difficult decision but we have chosen the Chemo/Radiation path followed by Surgery.