Jan 23, 2019 Latest post:
Sep 11, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. You are welcome to leave messages for me or Tom as he is no longer able to use his phone to talk or text. You are welcome to email him at firstname.lastname@example.org I know you all are interested in seeing how Tom is doing but for me it is emotionally exhausting to be asked on a daily basis, sometimes multiple times so I would appreciate that you check the caring bridge site and leave messages for me if you have questions instead of calling, texting or emailing.
Most of you know that Tom was diagnosed with ALS in the spring of 2017. ALS is a progressive neurodegenerative disease. Just over 6,000 people are diagnosed each year. As of right now there is no cure. To say we are heartbroken would be an understatement of immeasurable amounts for our family. For any of you that know Tom personally know that he is an incredibly strong man filled with so much compassion, love and positivity who advocates for many different organizations.
. We appreciate your support and words of hope and encouragement. Thank you for visiting. I will try to update weekly on Tom's progression