Can you support CaringBridge during our Spring giving campaign? Generous donors like you ensure that CaringBridge remains ad-free, private and protected.
Hi, I lost my husband almost 4 years ago after a 15 year battle with Huntingtons disease. Shortly after our daughter at 19 and pregnant was also diagnosed with juvinile Huntingtons disease. She is now 22 and in late stages. My granddaughter who is the light of my life and whom I have had custody of since birth. Only because my daughters disease prevents her from taking care of her. Skyla Rue (3years old) has recently been diagnosed with cerebral ataxia basically her cerebellum is to small. She cannot walk without assistance. She also cannot speak. With pbyaical, speech, and occupational therapy she will eventually do both. However, it could be years. I take her 4 times a week for therapies as well as diligently work with her at home. Which right now prevents me from being able to work. Her special needs requires me to be with her at all times. We are struggling horribly right now and could desperatly use help. The brakes in my van are bad and need to be fixed. I just don't have the money to do it. I would like to move closer to my family for some support caring for my girls but can't afford that either. Anything would be so helpful. Christmas is close and we just want to be home with family.