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Oct 5, 2016 Latest post:
Mar 17, 2019
I didn’t see it coming, what came as a diagnosis from when I was a teen could do this. From 1998 to 2014, my health changed in little ways that at first I was able to manage, ignore or dismiss at times. In 2012, it started to turn worse with increasing frequency of flares/episodes and symptoms. Life changed even more after 2014, a fall on a patch of ice caused extreme lower abdominal pain, an unexpected mass was found and removed (January), then an emergency surgery due to perforations (April), then another emergency life-threatening surgery (July) and then one more surgery (September). Then in 2016, one single lab gave way to the mysteries of 2014 and the prior years of puzzle pieces. I was given the greatest opportunity to regain my quality of life: a definitive diagnosis of a disease for which there is no cure, and treatment began immediately to manage the progression of the disease which I would learn included some of my organs. Treatment: Infusions of a drug that works by slowing or stopping the growth of T- and B- cells provides a balance of managing symptoms and gives me quality of life. I appreciate your support, prayers and words of hope and encouragement as I journey through what lays ahead.