Tina Berger

First post: 10/5/2016 Latest post: 11/3/2017
Since 1998, I have battled various symptoms, disorders, along with challenges in pregnancies and longer than expected surgerical recoveries. Those around me slowly became uncertain how to help, comfort or support me and I certainly do not blame them. My life was starting to be like a three-ring circus never knowing what was next, how I would feel. In 2014 the spontaneous perforations that nearly took my life remained a mystery to the ER, surgeons, my providers and even my specialist at Mayo. No one was able to explain the what/how it happened.  After 2016 when I attended a pain rehab clinic at Mayo, my life improved significantly in many ways as I learned to manage pain, learned to not catastrophize about symptoms and learned what support I needed in myself and my work and personal life to live a better life.  Nearly a year later, I am more active than I thought possible and still working. I wasn’t expecting more health problems or news, but in September 2017, after an ER follow-up similar to 2014 the visit to my local provider, who specializes in disease management, finally placed the remaining piece of the mystery. Every single various symptom, disorder - big or small, medication intolerance, pregnancy and surgical problems and even the perforations can now be accounted for. I have Ehlers-Danlos syndrome with collagen type III, which has arterial and intestinal fragility typical of vascular EDS, the 2017 Classification. I appreciate your support, prayers and words of hope and encouragement as I journey through what lays ahead for myself and children. This is my personal journey with Ehlers-Danlos syndrome and Primary Sjorgren's (absence of a rheumatic disorder).







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