Tina Berger | CaringBridge

Tina Berger

First post: Oct 5, 2016 Latest post: Sep 19, 2018
I didn’t see it coming.  In 1998, my health started to change. From 1998 to 2014, the constant uncertainty of symptom tidbits that would come and go grew and the pieces of the puzzle lay scattered about. By 2012 I was falling more, the fatigue was great, other symptoms came and went and worse was when the intermittent paralysis of the feet and legs begun.  In 2014, after a fall that caused extreme lower abdominal pain, an unexpected mass was found and removed (January), then an emergency surgery (April), then another emergency life-threatening surgery (July) and then one more surgery (September). No one had answers, but I was determined to not live with the walker or walking sticks! Determination and spirituality started to grow in me after attending a program in 2016 to manage the pain without medication. Then one month later, one single lab gave way to the puzzle pieces fitting together and gave me the greatest opportunity: a definitive diagnosis of an autoimmune disease for which there is no cure and treatment began immediately due manage the progression of the disease which I would learn included some of my organs. Infusions of an antibody therapy drug that works by slowing or stopping the growth of T- and B- cells provides a balance of managing symptoms and gives me quality of life for a disease in which there is no cure.   I appreciate your support, prayers and words of hope and encouragement as I journey through what lays ahead.

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