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10/24/2016 Latest post:
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Life doesn't always stay on the path that you want. Our path was changed on Oct 23rd, 2016 with a diagnosis of Cancer. But really the path changed a year earlier when Tim started showing signs of peripheral neuropathy. He had tentatively been diagnosed with CIDP, a rare autoimmune disorder. For the past year he has been undergoing a variety of treatments, none of which were working. He had significant pain in his abdomen, which really didn't make sense with his diagnosis. Unable to eat, he has lost 25 pounds in a few short months. Tim was finally approved to start IVIG infusions, which is the gold standard treatment for CIDP. We were hopeful that the IVIG would help him feel better. His first round of infusions were three days last week and we were excited to see him improve. But as the weekend after treatment wore on, he felt considerably worse. By Sunday morning, it was apparent that his health was critical. So we headed to the emergency room. He was triaged quickly and a wonderful Dr. heard my concerns about the abdominal pain not making sense with Tim's diagnosis. A Chest X-ray and CT scan quickly confirmed our worst fears- advanced multi organ cancer. We don't yet have a clear diagnosis- but we know that we are dealing with multiple organs, lymph nodes and lesions on his spine . After a year of treating the neuropathy, we realized that the it was probably the cancer causing the neuropathy all along. We are facing this straight on because Tim has a lot of people that are counting on him. Over the last few months we have used the catch-phrase made popular in "Finding Nemo".....keep on swimming. That's the path that we are on now.