Many of you have asked me for updates along this journey however I don’t know if I’ll be able to update anyone for a while so I created this page for my parents to post updates as the come.
As many of you know, about 7 years ago, when I was 15 years old, I was diagnosed with epilepsy. For the most part it has been mostly under control assuming I took my medication. This year towards the end of September, I started experiencing new as more significant symptoms such as light headedness, loss of memory, double vision, extreme heat sensitivity and major headaches just to name a few. So as usual my doctor checked my medication levels and ran another MRI. I didn’t think much of it because it was a pretty routine thing since this is what they did every time I had odd symptoms. However, this time my doctor looked at the MRI himself and discovered I have a brain tumor in the front right temporal lobe of my brain. He is unable to identify the exact type of tumor at this time but hopefully we will know after my surgery.
My surgery will be on Thursday December 5th at the Mayo Clinic. My parents and I will he headed down to Rochester on the 4th for a pre surgery physical and an MRI. The surgery will be approximately 5 hours long. After the surgery I will spend about a day in the ICU and then 4-6 days in the hospital after that. As far as recovery time, my doctor says 4-6 weeks so I will be out of work for the remainder of the year most likely. Assuming everything goes as planned with the surgery, the hope is it may rid me of epilepsy and eliminate the need to take medication In the future as well as my overall quality of life will improve once I recover.
Feel free to ask any questions you might have or text me however I’m not sure how soon I’ll be able to reply after my surgery.