Can you support CaringBridge during our fall giving campaign? Generous donors like you ensure that CaringBridge remains ad-free, private and protected.
Jun 5, 2020 Latest post:
Aug 2, 2020
Thank you so much for visiting our CaringBridge website where we are sharing the story of our son Thomas, who was diagnosed with neuroblastoma cancer one month before his fifth birthday. We are using this website to keep family, friends, and well-wishers updated in one place. We appreciate your prayers and words of hope and encouragement. Thursday June 4, 2020: We took Thomas to our family doctor, having found a lump in the upper right quadrant of his belly within the prior five days. Blood labs were drawn and an ultrasound was scheduled for the end of the day and by evening, we were informed that Thomas had an 11-centimeter tumor. He was given a diagnosis of cancer (although incorrectly of the easier-to-treat Wilm's tumor of the kidney). Friday June 5: We met with our oncologist for the first time and a urine test was done. Monday June 8: Thomas had a CT scan and we were informed the same-day that this was not a Wilm's tumor but was a neuroblastoma on Thomas's adrenal gland. Wednesday June 10: More blood labs were drawn at the oncology lab. Thursday June 11: Thomas had an MIBG scan and bone marrow aspiration of both hips. (We learned on 6/12 that Thomas's cancer has not spread beyond the original tumor with additional confirmation on 6/17 that the cancer has not spread to his bone marrow!) Saturday June 13: Thomas had his COVID-19 test, required under current restrictions in order to have any surgical procedures. Negative! Sunday June 14: Thomas received his Confirmation in the Roman Catholic Church early. Monday June 15: Meeting with the surgical team for consultation. Tuesday June 16: Thomas had an open biopsy of his neuroblastoma tumor and a port placed in his chest. Sunday June 21: Thomas received his First Holy Communion in the Roman Catholic Church early. Tuesday June 30: Thomas's laboratory results are back and he is diagnosed as having Stage 3/Intermediate Risk GanglioNeuroblastoma. Chemotherapy Cycle #1: July 2-22, 2020 July 23-August 16: Chemotherapy Cycle #3 August 14, 2020: It is anticipated that Thomas will have CT and MIBG scans after his second cycle of chemotherapy to see how much the tumor has shrunk.