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Aug 17, 2020 Latest post:
Sep 19, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
2020 has been a tough year. After the recent loss of Nana (Mary) from cancer, all while managing the daily struggles on an on-going pandemic, caregiver fatigue, and chronic disease, Mom has been given a diagnosis you never want to hear...cancer.
As some of you may know, our Mom has been battling a string of chronic and acute diseases over the past few years; her most recent symptom was the development of a fast-growing mass. After repeated testing and consultation with numerous specialists, she was diagnosed with a benign growth. However, after a year of trying various treatments, there were no signs of improvement. So, after further testing, mom was given the diagnosis of Myeloid Sarcoma, a form of Leukemia.
Myeloid sarcoma (MS) is a rare disease, affecting only 2-3% of the population. It is even rarer because it can be difficult to diagnose as it presents like many other diseases. MS can occur as an isolated mass somewhere in the body, but more likely than not, it precedes involvement of the bone marrow, known as Acute Myeloid Leukemia (AML).
This has been a challenging diagnosis, after spending the last 2-years as a primary caregiver for our aging Nana, who passed in July 2020, Mom was ready to embrace her new life and focus on her own health and well being. However, one-month after Nana's passing, Mom now faces her own battle with cancer.
Treatment for MS and AML are much the same. Both require high doses of chemotherapy drugs over extended periods of time. Side-effects of high-dose chemotherapy can be grueling, and result in a host of complications. Mom will be sending the next 4-6 weeks in hospital as she undergoes treatments which will eradicate her bone marrow. Her experience will be difficult to forecast, but we hope for the best and will keep everyone updated as we navigate this path.