This site has been established to share updates, love and support for and about my sweet mom, Tecla McCann, who was diagnosed with ALS in June 2018 and is in the later stages of her battle with this disease. She has remained strong, independent, brave and positive throughout the growing number of limitations that ALS has inflicted on her body. We consider all of you to be part of Team Tecla, the group of family and friends in Mom's inner circle who have been a crucial source of support and encouragement as the disease progresses. It is with your love and generosity that has made it possible for mom to whether the changes with such grace and strength.
ALS is a progressive neurodegenerative disease that has no cure. It attacks the motor neurons in the brain and/or spinal cord that control muscle movements throughout the body. The continual progression of this degeneration of the neurons eventually leads to their demise, making it difficult to control muscle movements.
In mom's case, her limitations started with speech and swallowing, and now include mobility, lung capacity, and hand/arm movements. There has been more significant progression over the last few months such that it is affecting all aspects of her life. While she is theoretically still independent, I am now living with mom during the week (going back to Quincy on weekends to visit my family) and a private caregiver is providing some help on the weekends. My brother Jon, who lives in California, has been involved and serves as a crucial source of support for both of us.
Mom and her clinical team have decided that hospice is appropriate at this time. While nothing major appears to be imminent, we also recognize that anything can happen at any time. Hospice will provide added support for both mom and myself and it will help to ensure that mom remains at home no matter what happens with the disease at this point.
Thank you for being part of Team Tecla, for adding joy and beauty to her life, and for all that you have done to enhance her quality of life during the last few years. We are ever so grateful! Please feel free to share notes or ask questions. I will share each and every one with mom. Please know if that you text mom, she may or may not respond as she can tire more easily and on days when her hands are particularly weak, it's more tiring to do so. But she does receive all her texts (although she does not use email) and they are all meaningful and touching.