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11/14/2016 Latest post:
Hello, this is my daughter, Trenity Monsibais. She is far from a normal 14year old young lady. She has been through hell and back more than once and yet always fonds a way to smile. She was diagnosed when she was 9 yr. Old with leukemia (a.l.l.) two days prior to her 1 year anniversary she relapsed and needed a bone marrow transplant. December 5 2012 she was given a second chance of life, all from a unrelated donor, 26 male from the Netherlands . We spent over 100 days at city of hope separated from her siblings and home but somehow we made it work and she slowly improved. She started to get her life back and began to feel like a normal kid but once again she relapsed for her 2nd time but this time leukemia was isolated in her right leg. So once again we started agressive chemo with the survival rate lower than the last. Just a few weeks into treatment trenity knew this was not the life she wanted for herself. Chemo was killing her faster than it was helping her. November 2015 she decided to go home and stop all treatments. As a mother I was devestated but I knew she deserved to be home and not in a hospital bed. She told us she was ready to do what she wants and that's to be a kid and she knew it wouldn't be here on earth. We respected her wishes as a family and brought her home. What we were preparing for was to make her comfortable and pain free at all costs. Yet ms trenity is unlike any other patient. She began to improve , no signs of leukemia were found in her blood or bone marrow. Doctors had no explanation as to why she was doing so well. We started her on t.h.c. oil for pain and appetite and steroids , which is all we could think of that could have put her in remission.
Yet again, leukemia returned and radiation was started on her right leg which seemed to do the trick.
She started school again for the first time in 2 years. We were all so amazed by her strength and will power to keep fighting with no chemotherapy.
Sadly in October 2016 we took her to children's hospital because she was in so much pain, after running many tests a c.t. scan revealed that she had tumors growing on both kidneys. She was heart broken. As we all are.
We're still trying to except everything that Is going on. She's in pain and it's not fair for any one let alone a child to have to go through so much
I just want my baby girl to be a kid. Enjoy being a teenager .....she was robbed of her childhood. We dnt know how much time she has left with us so we enjoy everyday the best we can.
She's a fighter for sure and will not give up fighting !