Taylor Chanoine | CaringBridge

Taylor Chanoine Taylor Needs A Kidney


Taylor has a severe Seizure Disorder and has had 6 severe episodes beginning at 9 months of age. She has had to be intubated each time and has remained in ICU for several weeks. The family has sought several opinions for treatment. On June 20, 2016, the family travelled to Al Dupont Children’s Hospital in Delaware for brain surgery to stop these seizures. Unfortunately, things did not gone as hoped. When they tried to wake Taylor up, she begins to seize. Medication had not been effective in controlling her seizures. She has required several more brain surgeries. Taylor developed a serious infection and had her colon removed. She is in kidney failure and was on continuous dialysis. She required a ventilator for breathing and a g-tube for nutrition. By the grace of God Taylor came out of this continuous seizure state and has shown progress mentally and physically.  In all of this process the family has gotten genetic testing on Taylor and she has been  recently been diagnosed with an extremely rare mitochondrial defect that has caused her seizure disorder and kidney failure. Taylor's mom had all intentions of giving her daughter one of her kidneys however since she is a carrier of the mitochondrial defect Dr.'s are suggesting that she not give.  Taylor's Dad has also been tested and he is not her blood type and cannot give either. This news is very disheartening but the family is not giving up faith and hope that Taylor will get a donation from someone soon. At present, Taylor is on Peritoneal dialysis, her seizures are under control, and she is not depended on the ventilator anymore. She is fighting and getting stronger each day but needs a kidney to have a better and more productive life.  We are asking for anyone who is willing to be tested to be a living donor for Taylor.  Her blood type is O and can be matched with any O blood type. 

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