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Nov 6, 2017 Latest post:
Nov 30, 2017
Thank you for visiting. We will keep you posted, and welcome your comments, thoughts and encouragement! November 7th Talia is scheduled for surgery at UCLA Children's Hospital to remove a cyst located on her bile ducts leading to the liver. It is a major abdominal procedure which will require about a week hospital stay. Here is the background. In September, Talia was diagnosed with this large Choledochal cyst near her liver along with possible Primary Sclerosing Cholangitis (PSC) which is an inflammatory disease of the bile ducts impacting the liver. The cyst is likely congenital. All of us are still working to grasp the gravity of this news as it was unexpected given Talia has no real symptoms. It was elevated liver enzymes in blood work ordered by her pediatrician and endocrinologist to check growth hormones that was the trigger for imagining and a liver biopsy during the first week of high school. Luckily, her liver is functioning well and the inflammatory damage is minimal and it is probably fortunate that we discovered this before more damage was done. Dr. Venick and Dr. Farmer, the UCLA Pediatric GI specialists treating Talia are amazing. We we also have Dr. Cox, a PSC specialist at Stanford on our treatment team. The prognosis is good-all bets are that removing this large cyst will alleviate the bile duct inflammation and stabilize her liver enzymes. That would be amazing, and would take PSC off the table! We are very good hands.