Tahj Barlow Hemophagocytic Lymphohist

First post: Oct 19, 2017 Latest post: Jul 13, 2018
Tahj is a 5 month old energetic and strong baby boy who had been admitted into Millers Children's hospital July 2, 2017 with a high fever of 104, during this fever the baby body started change, Tahj's fever has now turned critical, inflammation of the body. liver/spleen enlarged. Tahj became the mystery baby connected to many tubes, blood /platelet transfusion's.  Through testing, we learned  and confirmed Tahj has a rare life threating genetic disease called Hemophagocytic Lymphohistiocytosis, Tahj had been released from the hospital August 3, 2017 with weekly chemo treatments and follow up visits, his cure, a bone marrow transplant. Thanking God in advance, Tahj has a match and will be admitted at UCLA Santa Monica on November 1, 2017, Tahj will be admitted for one month plus, and the journey begins, it will take about a year for Tahj to become healthy, I am ready for the ride.  So thankful to the  entire team at Millers,  thank you all for being so caring of Tahj Barlow, I will never forget.

Mother-Triretta Kennedy

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Tahj’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register