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6/20/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time.
Sydney was diagnosed with a form of scoliosis in April. It developed very quickly and progressed to over 54 degrees within a short time, fewer than 4 months. Hers is a progressive-aggressive curvature of the spine in a difficult area to treat with bracing or physical therapies (above her shoulder blades). Surgery was recommended. We quickly began a round of second opinions and God opened the doors for us to meet with two of the top orthopedic surgeons in the D.C. area. As such, we met with the Division Chief of Pediatric Orthopedic Surgery at Johns Hopkins and the Division Chief of Orthopedic Surgery at Children's National Medical Center. Both men are highly qualified. Both come highly recommended. Both are leaders and innovators in their field. (Of note: God opened the doors for us to meet with both within 10 days of Sydney's initial diagnosis.) After meeting with both and discussing how they would approach surgical treatment, adding to that prayer and discussion with Sydney, we chose Dr. Oetgen at Children's National Medical Center for the procedure.
It has been a whirlwind! We are in the midst of pre-surgical appointments now and chose to update on Caring Bridge so that those who desired details could receive them and also because CaringBridge allows us to update in one location, vs. sending updates via text, e-mail and the very public FaceBook!
God has been so good to us and while this season represents a trial for Sydney, she is full of faith! She is undaunted, determined and utterly confident of the Lord's ability and desire to meet her and if you're local... you would note her complete unconcern for her future. "If we want to see God DO big things, we need to NEED him for big things! I can't wait!" (Her words, not mine.) "On a 'concern scale' of 1-10... I'm at a 1 or a 2." "God loves me and cares for me, if I know this already, what do I have to be afraid of? You're not afraid are you Mom?" These are just a few of her comments over the last couple month. Needless to say, she's teaching us a clinic on trusting God with unwavering faith... and as an adult, it's difficult to NOT have courage in the face of her own. Truly!
So thank you for checking in! Thanks for praying! We expect God to meet us as he has in the past and even now, we have not been disappointed with how, where and the manner he's already "shown up" for our daughter and cared specifically for us.