My current diagnosis is Acute disseminated encephalomyelitis (ADEM) and CNS demyelination. These are autoimmune disease/disorders.
Not sure when or how this all began. The first MRI showed the lesions in brain had been firing for a while. Kate spent the last couple of months with minor headaches that progressed to severe pain and vomiting. She was admitted to Good Shepherd in Longview to treat mastoiditis that was revealed on CT scan. However she continued to get worse. She made lots of blood donations and two lumbar punctures, endured without meds...she's a tough cookie! Kate was transported to Children's Medical Center in Dallas for more testing and treatment.
Kate's treatment involves extremely high doses of steroids. We must all be understanding if Sweet Sunshine Kate isn't as sweet for a while. If she does well at home, we will return to Dallas for MRI in July and meet with the "Neurololgy Team". We are trying to keep her stresses to a minimum and allow her to resume as many activities as she can...she is anxious to go, just not sure if her body will cooperate.
We ask for continued prayers as this is a lifelong diagnosis...
