Grace Emily Watry was born 11/2/16 with a rare chromosome rearrangement. Prior to birth, we were told our baby had Trisomy 18 and would mostly be born asleep. Trisomy 18 is an error in cell division resulting in a third, or extra chromosome on number 18. Unlike Down syndrome, which also is caused by an extra chromosome, the developmental issues caused by Trisomy 18 are associated with more medical complications that are more potentially life-threatening in the early months and years of life. In Grace's situation, instead of developing an extra chromosome, one of her chromosomes flipped, or rearranged, causing the doctors to give us little information about Grace's development or her life expectancy.
Grace was born four weeks early and has spent 2.5 months of her life in the hospital. What we do know so far is that she has two holes in her heart and has a seizure disorder. At this time, we are unsure if Grace will need open heart surgery as an infant or young child. She also doesn't know how to eat from a bottle, so a gastrostomy feeding tube (a g-tube) was surgically placed and her nutrition goes right into her tummy. We hope that she'll be able to eat by mouth one day, but for now she is growing and that's what is most important! We appreciate your support and words of hope and encouragement. Thank you for stopping by to check in on our sweet baby girl!