SUSAN Neels story began with her birth on August 8, 1967. She has struggled since her very first encounter with her first breath, which didn't happen as quickly as it should have. Disabilities immediately became a part of her everyday life. And of her family's. Cerebral palsy, microcephalic, and epilepsy was diagnosed early on.
SUSAN has had mostly good years, attending The Rehabilitation Ctr. In Evansville, In from 16 months to age 7, when she entered public school through age 20, when she began her 28 years at Hugh E Sandefur Center. She was a good and faithful employee there, and known for staying on task and persisting until it was done. And she LOVED getting that paycheck, too!!! She enjoyed the many friends she made and still has there.
At some point in the past recent years, she became unhappy living at home, and wanted to have 'her own home'. She never really considered herself as disabled for the most of her years, and therefore thought she could do anything! However, facts were facts, and she required help, and lots of it, just in doing the daily care things. But she persisted, and in APRIL of 2017, went to live at Colonial Terrace Nursing Facility in Sebree, Ky. She considers this her home now.
In April 2018, SUSAN Neel was diagnosed with terminal colon cancer. She underwent surgery on April 12th to remove the tumor, a section of the colon, and 18 lymph nodes. Three were malignant. Five days later, she dehisced, breaking all internal repair work, and allowing body fluids to escape in the body cavity. She went back into emergency surgery, and spent three more weeks in the hospital.
Since she isn't capable to do so, her brothers, Andy and Ty, and I made the decision for no treatment. We feel we have made the absolute best decision for her, knowing what the treatment would be, and knowing she could not withstand what was to be done.
We chose to go the Hospice route in caring for her, and know that it is the right one.
Since then, she has been back in her home in Sebree. However, she has been mostly in bed, with no desire to 'wheel around' the hallways like before.
I made the decision to bring her home so she would get the care she required on September 17th.
Then , this...
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