Susan Natoli Green

First post: Jul 15, 2022 Latest post: May 8, 2024
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your prayers, support and words of hope and encouragement. Thank you!!!

Last year, July 2021, I received a Report from a CT Scan none of us ever want to hear. I had a large Mediastinal Posterior Mass, 5”x3”x3” pressing against my lungs, esophagus, trachea AND it was “surrounding my aorta.” The mass was pressing against nerves, which caused severe pain radiating to my back between my shoulder blades and then radiated to other parts of my back, that were sometimes Nonstop for hours at a time of “unbearable” pain!!! My Surgeon said, it’s inoperable. The only way to treat it is to shrink it through chemo. 

A PET/CT Scan was done on 8/17/21, which concurred with the CT scan that was done prior. On 8/26/21, my Surgeon took Biopsies. The Pathology Results showed they were malignant and I was diagnosed with “DLBCL” 

On 8/31/21 - I had a 2nd opinion with Moffitt. The Oncologist agreed with the Oncologist opinion here at Orlando Health.

9/3/21 -  Had Echo with Strain, which allows Docs to see if my heart was strong enough to withstand starting chemo. On 9/9, I had Surgery for a Power Port insertion. On 9/13/21, I underwent a Bone Marrow Biopsy. So, I was diagnosed with Stage II, Defused Large B-Cell Lymphoma. It was an aggressive fast growing cancer. I started Chemo on 9/16/21 and completed my Treatments on Jan 6, 2022. Around mid January this year, my Oncologist said, I was in Remission. There was still a 2.7 size mass, but the cells were dead. .. 

Since then, I experienced mild, but persistent pain in the same vicinity of my back every night for 2 weeks. I let my Oncologist know, and was sent for a CT Scan June 22, which the Report showed a posterior mediastinal mass measuring 6.5 x 4.6 cm, which abuts the descending thoracic aorta. On 7/12/22, my Surgeon took Biopsies and saw enlarged lymph-nodes. On 7/15/22, the Pathology Report showed positive tumor cells and cancer in several lymph-nodes, which are compatible with findings from last year. 


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