Welcome to Caleb's Caring Bridge website! We will be using this site to keep family and friends updated in one place.
Also, we have been blessed with an outpouring of offers to help during this challenging time, so we have listed several things that would be a great help to the family under the "Ways to Help" icon above. Once you are in the "Ways to Help" section, you can visit the planner to sign up for different tasks to help with.
In late January, Baby Caleb was air flighted to Nationwide Children's Hospital after a lengthy bout of what was described by his pediatricians as a "viral" sickness. During this visit, doctors learned that Caleb had pneumonia as well as several other viruses and his white blood cell count (specifically a white blood cell called a neutrophil) was dangerously low. Neutrophils' role in the body are to fight bacteria. The doctors at Nationwide ran a battery of tests to try to determine if Caleb's sicknesses were caused by a naturally low neutrophil count or if his low count was due to the amount of viruses he had at one time (viral suppression). Unfortunately, after a few months of numerous hospital visits, and doctors examining test results, it has been determined that Caleb likely has a lifelong condition called cyclical neutropenia. "Cyclical" means that the neutrophil count peaks and then tanks to around 0 in an ongoing pattern for no clear reason. Unfortunately, Caleb will not grow out of this disease, and will have to receive bone marrow shots to treat his low immunity for the rest of his life. Doctors have told Kristin and Kevin that cyclical neutropenia on its own without the presence of cancer is very rare (about 1 in a million) but Caleb's case is even more rare (about 1 in 10 million) so they have actually called it "Caleb's Syndrome ." because it is likely due to a genetic mutation they have never seen before.
Caleb has to go to the hospital anytime he runs a fever and has a low neutrophil count, as his immune system is just too weak to fight off any infection or virus he may contract. Kristin had to step away from work, as it was too risky to keep both Caleb, and his big brother Colten in childcare any longer.
However, through it all Caleb has shown tremendous strength, too, bouncing back quickly after being poked and prodded for days on end. The picture above is not long after a surgery he recently had to go through. All smiles, and baby giggles!
Fast forward to the last week. Caleb was again life flighted to Nationwide Hospital with pneumonia again, and this time a new battery of tests revealed another rare blood disease that involves a deficiency of immunoglobulins in Caleb's blood. Immunoglobulins are antibodies found mainly in the plasma cells which neutralize viruses and bacteria. Caleb's blood was deficient in 4 of the 5 immunoglobulins.
During his stay he was put under anesthesia for both a bone marrow biopsy and a bronchoscopy. The doctors extracted bone marrow to run tests on it and a bronchoscopy was also done to get a good look at Caleb's lungs and airways, as they have strong suspicions Caleb has asthma and wanted to see what might be causing his repeated bouts with pneumonia.
It will be weeks, or months, before all the test results will be in from Caleb's latest hospital visit and Kristin and Kevin are prepared for another long road ahead of repeated hospital visits, expensive medical and pharmaceutical bills, and the emotional strain of having a sick baby as the doctors work hard to determine what this new condition involving the lack of immunoglobulins/ antibodies in Caleb's blood could mean long term.
We thank you all from the bottom of our hearts for your support, words of hope and encouragement, and for reaching out to see how you can help!
You are truly God's angels on Earth to us. God Bless.