Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. I was diagnosed with metastatic Ewing Sarcoma (EWS) in September, 2016. It is a pediatric cancer rarely found in a 25 year old like me. The cancer has moved from my thoracic spinal region to my lungs. I was unable to catch my breath and that caused me to go to the emergency room where the initial diagnosis was made. I was accepted into the Children's National Oncology group's clinical study where I was randomly selected to receive ganitumab. This is an antibody designed to stop the function of Insulin-Like-Growth Factor-1 Receptor (IGF-1R). Antibodies are used by the body's immune system to fight foreign foreign or diseased cells. IGF-1R is a molecule that is usually found on EWS cells and can promote cancer growth. By blocking IGF-1R, ganitumab may block the growth of EWS cells. The drug will be given in conjunction with the normal chemotherapy protocol for EWS. I have a long road ahead of me in the fight to beat the the disease continue to pray for me and my family.
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