William Lazzuri Super Will

First post: Apr 17, 2018 Latest post: May 8, 2018
On July 8, 2017,  the world got a little brighter and ours got a whole lot more joyful. Our sweet boy entered this world red faced, loud lungs, and ready to take on the world. We were thrilled.

It didn't take us long to notice that something was a little different with our boy's forehead and when something is different on your newborn baby, it's terrifying. Our doctor encouraged us not to worry until we knew more. We would go in for his first check-up and go from there.

At his first doctor appointment, his doctor informed us it appeared Will's sutures had fused too early. He referred us to Mary Bridge for an  x-ray which would either confirm that diagnosis or rule it out.

A few days later it was confirmed.  Will's metopic suture had already fused.

Our skulls are made up of several plates that join together at about one year of age or older.  The metopic suture is centered in the middle of the forehead.  Our baby boy's sutures were fused when he was still in the womb.  William's suture fused early and at an odd angle.  If it had not been diagnosed properly, by the time he got to be around 4 years old it could either prohibit the growth of his brain, or alternatively, his brain would expand outwards giving him an enlarged head in the back.

As it turned out, Children's hospital in Seattle has an entire department and surgical team devoted to this condition so our doctor referred us there! During our first appointment, we met his surgical team and they explained everything.  We knew that as scary as it was, our boy was in the best hand's.

William's surgery is on May 4 and we will do our best to keep his page updated as we near his surgery and go into recovery.

We know that God does not make mistakes and this is the journey HE has planned for Will and our family. We are scared - but we feel so blessed He chose us to be Will's parents and know that this is only just the beginning of an incredible journey for our boy.

I praise you because I am fearfully and wonderfully made, Your works are wonderful, I know that full well. Psalm 139:14

You can read more on his condition here: http://www.seattlechildrens.org/medical-conditions/bone-joint-muscle-conditions/craniosynostosis/

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with William’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register