Steve Sullivan

First post: Apr 22, 2016 Latest post: Sep 26, 2017
Welcome to my CaringBridge site. I've created it to keep friends and family updated. I appreciate your support and words of hope and encouragement during this time when it matters most.

As many of you know, I am Cancer survivor of 30 years. I had AML and at one time given less than 5% chance to be alive in year. I have learned that God numbers my days and has kept me going. Unfortunately, during my AML treatments with many blood transfusions I was given Hepatitis C; this was before they could test for it in donations. Since then I have remained Cancer free, but the Hep C became a chronic infection that through 4 treatments I been unable to kill off. Over the decades, the Hep C has lead to advance cirrhosis and my liver is now in a decompensated state headed towards failure. In the last 2 years, I been seen more evidence of how bad my liver has become, first with on set ascites (water retention), increased bilirubin leading to jaundice (yellowing of eyes & skin), and recently to hepatic encephalopathy (a build up of ammonia on the brain) leading to a scary state of confusion where I could not recall 6 hours of my life, but somehow drove 40-50 miles down the highway from O'Hare airport to a parking lot lost in the southwest suburbs of Chicago. I am being referred to Northwestern Medicine for a liver transplant evaluation.  

My wife doesn't like the idea of this journal as seems to her to much like an End. This journal is not about the ending of life, but the journey to live each day under God's faithfulness. His love and care never ceases to amazes me in the face of difficulties. I hope my journey can be a testimony to His carrying me on His shoulders. 

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