Steven Bickley

ALS has been around for many years; however, until we know someone with this disease it is often very vague. This is a debilitating disease with no cure in sight and we need to keep fighting until a cure is found. People with ALS can find themselves trapped inside a body that no longer responds to their normal everyday functions, although their mind is still quite normal. This is obviously not a disease I would have chosen, but the Lord has allowed it in my life for His reason and I will trust Him no matter what. We do not seek pity, but understanding, as many people are uncomfortable around us at different times. Our emotions are quite raw and sometimes we cannot control them.  Treat me as you would anyone else and, when I talk funny, just smile and say “What did you say”? It’s ok to smile and chuckle as I often cannot understand myself either! My son bought me several tablets upon which I can write and then push a button to erase the current dialogue. My daughter has been very valuable in assisting with all the medical insurance bills which have been overwhelming. They have both been such a blessing to us.