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Apr 10, 2017 Latest post:
Jul 25, 2017
11/23/16 was Skylar's diagnosis at UNC Chapel Hill with ALL B Blast Leukemia. His symptoms were a fever for 3 days that would go away during the day and return at night. Masonboro Urgent Care performed a blood test and found the Leukemia and we were off to Chapel Hill. Skylar had just gotten his driver's permit the week before and had just finished out the JV football season at Ashley High School as a freshman, and bam! He started his chemo treatments that Friday and we are now in month 5 of treatment. Throughout this journey, there have been numerous scares. One of the biggest scares was in December. One of the chemo meds that he was taking spiked his sugar levels over 600, which is where diabetic coma can happen. He was air lifted to Chapel hill ICU from New Hanover Regional. After he was finished with this chemo medicine, the diabetes went away, thank God. He is still being treated at UNC, but his bone marrow is still showing traces of leukemia. This is leading us to look at alternative treatments in addition to the standard chemo. We have been in contact with CHOP (Children's Hospital of Philadelphia), who has some of the leading edges in managing this cancer. CAR-T immunotherapy is what we are particularly looking at with this hospital. There is a long waiting list to get in, but we are very hopeful that he will be able to. Every day is a new day.