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9/28/2016 Latest post:
Hello friends, our son Simon is back in a body cast after having surgery on his right hip again. The 2008 surgery was not supposed to last forever and his hip dislocated several weeks ago. At first, the doctors thought they could put Simon's hip back in place under sedation but his ligaments were so loose, the head of his femur kept popping out of his hip socket so surgery was scheduled for September 22nd. The fancy name for the 10 hour procedure is a periacetabular osteotomy. The non-fancy name is they tightened his ligaments, broke his pelvis in three places to reshape it, removed the old hardware from the 2008 surgery, broke his femur to re-angle the way the head of the femur would fit into the pelvis, then they added new hardware. Simon is in an orange body cast now that starts just above his abdomen all the way down to his right ankle and to just above his left knee.
He's 60 pounds heavier than he was for his last hip surgery in 2008 and we can't care for him at home this time. He's being cared for at The Children's Center Rehabilitation Hospital in Bethany for the next 6-8 weeks until the cast comes off and some rehab is complete. This is a painful journey of recovery for Simon and a stressful time for our family as we adjust to the The Children's Center’s requirements of 24/7 adult presence. Alan and I are juggling with one of us being with Simon at all times while the other one is taking care of Lucy and Preston and trying to take care of the house. I stay here at the center with Simon from Sunday afternoon until Friday evening then Alan takes over for his weekend shift. We can't leave him alone.
We desperately need prayers and respite from adults (18+) to sit with Simon at the center so we can leave for an appointment, run an errand, or just get a break. You can even stay the night! :) The doors open at 8AM every day and close at 9PM every night.
Time is a precious gift that we do not have enough of right now. If you are available, we would greatly appreciate your gift of time. Simon can repay you with a smile and we can repay you with thanks and prayers.