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Many know me know me as being that easy-going woman of faith, having fun and enjoying life with Stan. Not worried about much. I’ve had Multiple Sclerosis since 2008 (well that’s when I was diagnosed ). Many years I only had numbness and tingling in my hands but I was dealing with it. In 2018 I had a major release and lost my balance and my vision. I had steroids which brought back my vision but not the balance. With bad balance, I’ve still been able to fake it and most of you didn’t know (or you thought I was drunk lol). Then in early 2018 another relapse getting weakness in my legs. I decided to go for Lemtrada, a supposedly savior for MS. It was a 2 year treatment that each time I had significantly decreased immune system and had to be in a bubble for months - mask, sanitizer, couldn’t eat out. Sound familiar?! I was in the pandemic for 2 years prior to the COVID. Well Lemtrada didn’t work for me. You may not even recognize me now. Now I can hardly walk and many other issues. I’m barely able to get around now. I need to use a wheelchair, a cane and a walker or something. I have been fighting it I don’t want to be labeled handicap. The truth is I have been in a steady decline. I can barely walk or even make it to the car. I can’t enjoy shopping, going to fest (when we can), walk on a beach and so many Thai took for granted. I can’t even carry myself in the grocery store. I rode the scooter now 😞. My MS is just progressing fast now. In September 2019 when I got married, I could I could walk down the aisle. I could stand up all night and take pictures. Today I could never walk down the aisle or stand that long to take pictures. I’m just worse and worse and worse and that happened in a year! I thank God I didn’t get married a year later. In an attempt to stop this rapid progression, I want to have a new cutting edge stem cell treatment. It’s called HSCT and I want to have this soon. It will require chemo so it’s heavy but I desperate to not get any worse. Next it’s in a wheelchair not able to take care of myself. I have to do something! But as you can imagine, it’s very expensive. My insurance will pay for part of it but I’m stuck having to pay. $20,000 out of my pocket though. Donations are helping. Thank you! Still pray for me. God is in control!! Thank you for reading my story.
Below are links to more information on the HSCT treatmenthttp://hsctmexico.com/ms_landing.php?gclid=CjwKCAiAmrOBBhA0EiwArn3mfBtH8a7zDSoB1nwt6zxHq45OAlMQVpIbwXxHgkcDV6d4U5IY2DRBwBoCqLAQAvD_BwE