Bubbles anyone?

Shruthi Reed

First post: Sep 1, 2010 Latest post: Aug 9, 2016
Welcome to our CaringBridge website. We've created it to keep friends and family updated about Shruthi. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

God brought Shruthi home to her family on March 18, 2010 from India. It took us a total of 17 months before we were allowed to bring her home. Shruthi was a Promise Child through WACAP agency, which meant they had made a promise to find her a forever family. She was a Promise Child from early 2006 until we made a commitment to her in October 2008. The wait was very long however God blessed each and every step towards bringing Shruthi home and continues to bless her.

Shruthi was thought, by India, to have Arthrogyposis. Once home we were able to get Shruthi a proper diagnosis which has allowed us to get proper medical treatment for her.  Shruthi has Larsen Syndrome which is a very rare genetic disorder. Larsen Syndrome affects 1 in 100,000 births world wide and has caused many limb deformities in Shruthi's little body along with cleft palate, hearing and vision loss, curve of her spine and a dilated aorta of her heart. We have been so blessed by Shruthi and are very happy God chose us to parent this very special little girl.

Since July 2010 Shruthi has undergone seven surgeries in her first six months home and another 4 surgeries up to 2013. First order of business for 2010 was surgery to correct her strabismus (cross-eyes) in both eyes, then she had surgery on both of her feet to correct the club feet. The doctor casted her legs all the way up to her hips. Then in August she had surgery on both knees to correct the bones so her legs would no longer bend backwards. At this time she also had surgery on her left foot again. The foot was not staying in the position needed. Our ortho surgeon, Dr. Anderson has been wonderful. Shruthi under went cast changes every two weeks from July until November 22nd when her casts came off and her braces went on. At this time Shruthi also received her first pair of shoes, something a year ago was impossible.

Shruthi, despite all her challenges tends to wrap everyone around her little finger. She gives everyone around her so much joy, hence her middle name of "Joy". Her smile can melt the coldest ice cube and her challenges do not stop her from anything she wants to do. Her determination and "can do" attitude shows us all that nothing is impossible as long as God is in control. We do not consider Shruthi disabled but challenged. We hope to instill in her that she can do anything other kids can do. The sky's the limit!

God has placed the right surgeons in place at just the right time and we are so blessed to have our wonderful health care professionals who truly care about what is best for Shruthi. Just as God made a way for Shruthi to come home to her family He will continue to guide us as we raise Shruthi. We rely on our faith and truly believe through Christ all things are possible.

Shruthi shows us all that if you give your best anything is possible. Shruthi is not disabled or broken, she is challenged which makes life interesting and shows the world that if you believe you can achieve.

Thank you for stopping by to check on Shruthi and her progress. We know that all things are possible through Christ and continue to rely on Him to supply all our needs. Your continued prayers are appreciated.

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