Colton Whitney Shaw was born on Wednesday, May 10 at 5:32pm - he weighed in at 9lbs,4oz and 21" long. At a routine 18 week ultrasound (Dec 19) and subsequent echocardiograms, it was discovered that Colton had a complex Congenital Heart Defect (CHD), which essentially means that he had multiple heart defects that do not allow his heart to pump as efficiently or effectively as a "normal" heart. His official diagnosis (received on Dec 27) is L-Transposition of the Great Arteries with Ventricular Septal Defect (VSD) and Pulmonary Atresia.
This essentially means that the ventricles ("Great Arteries") of his heart are reversed with the Left pumping blood to the lungs and the Right pumping blood to the body (the right ventricle is typically smaller and not as strong). The VSD (hole) between his two ventricles means that his heart is, effectively, a single ventricle heart without two separate and distinct lower chambers. Lastly and most important for survival, his pulmonary artery is missing its connection point to the heart (aka "pulmonary atresia"). On May 15, at just five days old, Colton had open heart surgery at Levine's Children's Hospital in Charlotte which involved insertion of a BT Shunt and a patch on his pulmonary artery. He is likely to require at least two more surgeries during his life, with the next being sometime between 6-12 months of age. He may also require a pacemaker and ultimately, a heart transplant later in life, but both of those procedures remain to be seen (and are not expected to be the immediate focus for his family or his cardiologists).
Thank you for visiting our page and for supporting the Shaw family through this journey.
*For those looking for ways to help, please note that we ask that no one donate to our family financially, although we greatly appreciate the gesture. If you would like to learn about other ways to support our family, please email Erin's sister, Brooke Adler (firstname.lastname@example.org) and she can direct you.*