Sebastian Stark Sebastian's Journey

First post: Jan 30, 2018 Latest post: Mar 7, 2018
At our son Sebastian's 24 hour check up his oxygen levels were lower than normal. The nurse listened to his heart and heard a murmur. They then brought in a doctor and she too heard the murmur. They decided to do a fetal echo to check out his heart. After about two hours and many pictures and scans of his heart the doctor informed us that something was seriously wrong. He had an interrupted aortic arch meaning that the top and bottom parts of his heart had a disconnect which causes low oxygen levels and low blood flow to the lower extremities. It needed to be repaired as soon as possible. They also found a small hole in between the two ventricles. He was taken to the NICU to get prepped to be transported by ambulance from Gundersen Lutheran to Mayo Clinic Hospital St. Mary's campus in Rochester. We quickly packed up and got discharged and followed. We arrived around midnight Friday morning. He was given an IV with Prostaglandin through his umbilical cord to keep his heart working until surgery could be done. Today, Monday January 29th he had that surgery. It's called the Yasui Procedure and this procedure is done when a baby's heart has an interrupted aortic arch and a left ventricular outflow tract obstruction or aortic atresia-severe stenosis with ventricular septal defect (AA/VSD) and two adequate sized ventricles.

Recovery time is going to be at least one month. At this time we could really use all the love, prayers, and support we can get. This is a very rough and stressful time for our family and we need to focus on our son and his recovery. We just wanted to keep everyone informed but we need our space and time to focus on our little family. So we apologize if we don't respond to any messages or questions, as our first priority is Sebastian. He has been a trooper through this whole ordeal. He is one strong little boy! 💙

UPDATE: he is out of surgery and doing well 💙💕

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Sebastian’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register