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May 5, 2017
Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.
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After almost a year of tests with results that weren’t normal but weren’t overly troubling, various gastrointestinal symptoms, and finally a prolonged bout with what was thought to be the stomach flu, Scott was diagnosed with neuroendocrine cancer of the pancreas and liver on August 21, 2008. Seven surgeries later, a year of chemo, a platoon of doctors, excellent care, supportive friends and a lot of luck, Scott had 5 really good years of remission. In March of 2016 he went in for his quarterly routine blood tests and found out that the one indicating a liver tumor was unusually high. After lab error (for which we would have sent them a thank you note), was ruled out, targeted liver scans were begun. Two tumors were discovered in his liver, one of which is inoperable. We went back to the genius team to figure out alternative therapies and whether Scott is an eligible recipient of a liver transplant. No transplant. The new plan is to use chemo to slow the growth once the rate of growth has been determined, and hope that the next best thing gets FDA approval in the interim.