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Aug 28, 2018 Latest post:
Sep 4, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Many of you have inquired about Scott. The outpouring of support has been over-whelming throughout this entire journey, and it has become quite evident that the best way to keep everyone updated on Scott’s condition is to establish a central hub for information to be passed on to all those who care about him.
To be clear, those of you that know Scott, will find it no surprise that he has historically NOT been in favor of sharing developments as he navigates this path, but he has now agreed, along with Pam and the kids, that Caring Bridge is an incredibly useful platform to share updates with the people that mean the most to him.
A little history as to what brought us to this point. In the summer of 2016, Scott had begun to experience some unusual compromises in his balance and strength. As Scott does, he didn’t think there was really anything wrong, and attributed these minor inconsistencies to “getting older and not exactly (being) the picture of health”. He did enlist the opinion of his family physician to help try and figure out what might be the causing these subtle changes.
In December of 2016, Scott, Pam, Tianna and TJ flew down to Phoenix to spend Xmas with Dan and Mary Jo, (Scott’s older brother and sister in law) and their three daughters. As is always the case when Dan and Scott get together in any warm climate, golf was on the agenda over a couple days of the trip. During one of these golf outings, we noticed that Scott was having a seemingly difficult time maintaining his level of play. He brushed this off as “something” was up, and ‘we’re working to figure it out”.
Fast forward to February 2017. Scott had completed a number of different muscular and neurological tests between a series of specialists and the Mayo Clinic in Rochester. In the following months, after eliminating numerous possible causes for Scott’s condition, in May of 2017, Scott was officially diagnosed with Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease.