Jan 29, 2022 Latest post:
Feb 19, 2024
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your prayers, love, & words of hope and encouragement. Thank you for visiting.
If you haven’t heard the details of our past 7 months, then here you go.
Scott was noticing some abdominal discomfort off and on in early 2021. It starting becoming more frequent and so I (Kate) encouraged him to go see the doctor. He had an abdominal X-ray taken on May 7th. The doctor then ordered a CT scan. On May 19th, Scott got a call from his physician who wanted him to come in that same day. Scott and I went in and found that the CT scan revealed a very large retroperitoneal leiomyosarcoma (LMS). This cancerous tumor was located in his abdomen and was pressing on his bowels and bladder. We were so overcome by emotion and sat and cried and prayed. We did alot of research and decided to go to the Cleveland Clinic (CC) because they were in the top 5 cancer hospitals in the nation. We learned they had sarcoma specialists there who had dealt with LMS frequently. To give you a little background on LMS, it is a type of soft tissue sarcoma (which only affects about 1% of the adult population) that affects smooth muscles. Scott was scheduled to have surgery at the CC and started to have alot of abdominal pain and so his surgeon ordered him to go straight to the Cleveland Clinic ER and they bumped up his surgery date to June 23rd. Scott’s surgery went well and his surgeon, Dr. Simon, was very happy and said they were able to remove all of the tumor successfully with clean margins. They had to shave off part of his bladder where the tumor had attached to. Scott had to stay in the hospital for 1 week and he recovered nicely. He lost quite a bit of weight but with time was able ti gain most of it back. He was ordered to have 3 month follow-up CT scans for the first 2 years because the recurrence rate of LMS was about 50% within the first 2 years. He had his follow-up scan in Sept, which was clear. Then he had hos Dec 20th scan. He had a follow-up tele-health call with Dr. Simon on Jan 7, 2022. The scan revealed a recurrent bi-lobe tumor measuring about 9cm & 8cm. Dr. Simon had a meeting with the tumor board on Jan 10th and followed up with us on Jan 11th. They had recommended chemotherapy initially to see if the drugs would stop the growth of this rapid-growing tumor before removing it again surgically. We had hoped to just remove it again surgically with no treatment, bit that was not in our best interest as the tumor would just come back. Scott and I made calls to many different hospitals and holistic treatment centers. We prayed and fasted and prayed some more. We had so much information and were incredibly overwhelmed. We prayed for wisdom and a clear direction from the Lord as to where he wanted us to go for treatment. We decided to do chemotherapy like CC had recommended. We met with Dr. Mrozek in Lima, OH on January 25th. We were there for almost 3 hrs and really enjoyed her and her staff, especially our Nurse Navigator Suzie! She was so sweet and encouraging! Scott was scheduled to start chemo on January 28th.
We are praising the Lord for his provision, and trusting in His healing power!
“Praise the Lord, my soul, and forget not all his benefits- who forgives all your sins and heals all your diseases”-Psalm 103:2-3